Cystic Fibrosis Nurse Coordinator - Clinic-Pulmonary (0.8 FTE, Days)

Category: Nursing Staff
Job Type: Part-Time
Shift: Days
Location:  Palo Alto CA 94303
Req: 16934
FTE: 0.8

Nursing Staff

0.8 FTE, 8 Hour Day Shift

At Stanford Children’s Health, we know world-renowned care begins with world-class caring. That's why we combine advanced technologies and breakthrough discoveries with family-centered care. It's why we provide our caregivers with continuing education and state-of-the-art facilities, like the newly remodeled Lucile Packard Children's Hospital Stanford. And it's why we need caring, committed people on our team - like you. Join us on our mission to heal humanity, one child and family at a time.

Job Summary

This paragraph summarizes the general nature, level and purpose of the job.

The Cystic Fibrosis Coordinator provides a central role as manager of clinical care, program development and clinical program management for cystic fibrosis patients in both, the inpatient and outpatient setting, ensuring continuity of care for patients and physicians.  Responsible for direct communication with patients and CF team physicians, participates in team meetings and inpatient rounds, tracks and maintains patient records, identifies problems prior to clinic visits and communicates with appropriate team members, provides coordination between clinical services and settings such as transplant and home care, implements program objectives and provides patient education.  Works as a team with Adult CF Clinical Coordinator to develop and implement program objectives and coordinate clinical programs.

Essential Functions

The essential functions listed are typical examples of work performed by positions in this job classification. They are not designed to contain or be interpreted as a comprehensive inventory of all duties, tasks, and responsibilities. Employees may also perform other duties as assigned. 

Employees must abide by all Joint Commission Requirements including but not limited to sensitivity to cultural diversity, patient care, patient rights and ethical treatment, safety and security of physical environments, emergency management, teamwork, respect for others, participation in ongoing education and training, communication and adherence to safety and quality programs, sustaining compliance with National Patient Safety Goals, and licensure and health screenings. 

Must perform all duties and responsibilities in accordance with the Service Standards of the Hospital(s).



  • Serves as case manager for pediatric cystic fibrosis patients, working closely with physicians and other CF team members to ensure continuity of care, follow-up and comprehensive care management.

  • Attends scheduled CF clinics, weekly inpatient team conferences, inpatient rounds and outpatient team meetings.

  • Available for consultation with inpatient staff and patient education and for consultation with inpatient CF patient and families.

  • Reviews patients' overall change changes in clinical status since last clinic visit and over the previous 12 months, using medical records and epidemiological records from database and notifies physician of notable changes.

  • Identifies problems prior to clinic each week and briefs members of CF team on issues that need to be addressed.

  • Prepares patient for physical examination, assures that diagnostic, treatment procedures and/or consultations are appropriately ordered and carried out.

  • Sees patients for follow-up interventions or monitoring on non-clinic days.

  • Assists physician with exam and treatment as necessary and carries out physician orders.

  • Receives and responds to patient phone calls and communicates issues and news to physician for advice and consultation as needed.

  • Develops and maintains charts as requested, including follow-up on quarterly and annual care path (labs, pulmonary function, chest x-rays, etc) to include communications to facilitate timely ordering of tests.

  • Documents changes in medications, care management techniques and other factors between clinic visits.

  • Annually documents team recommendations for care management, enters into medical record and provides to primary care physician.

  • Functions as support person for charge nurses (i.e. resource, consultant, etc,) through application of clinical knowledge.

  • Regularly interacts with other CF team members to ensure coordination of care and appropriate referrals to needed resources.

  • Assembles special equipment as needed for the day.

  • Cleans & sets up exam rooms after each patient and at the end of the day.

  • Provides orientation to residents and fellow rotating through clinic.


  • Organizes materials for weekly team conferences and facilitates discussions to include quarterly a) nutrition status; b) pulmonary status (PFTs, bacteriology; imaging); c) psychosocial functional; d) illnesses since last visit; d) significant changes in medical regimen and e) education needs.

  • Implements plan of care, either directly or as a resource.

  • Shares responsibility for evaluation of intervention.


  • Provides patient education to inpatients and outpatients.

  • Updates patients and families of new therapies and techniques, adverse reactions of commonly used medications, signs and symptoms of complications.

  • Organizes and coordinates education and referrals for newly diagnosed patients.

  • Assists with education for transfer of adolescents between pediatric and adult care programs.


  • Responsible for providing continuity of care between clinic visits and levels of care.

  • Follows-up on all sputum and lab tests so that interventions such as changing antibiotics can be done in timely manner.

  • Coordinates home care and keeps track of patients on home therapy.

  • Communicates with the Lung Transplant team regarding clinical status of listed patients and attends transplant team meetings as requested.

  • Maintains liaison between inpatient and outpatient nursing services as well as with other departments as needed regarding needs of patient and of overall service and program.

  • Serves as patient advocate with regard to physician interactions, social and financial family needs. Informs and/or coordinates appropriate support services to resolve family needs or concerns.

  • Works with Emergency Room to triage patients referred through the ER and does follow-up of emergency room visits.


  • Maintains familiarity with current research studies and protocols at LPCHS.

  • Informs patients of active research protocols.

  • Acts as liaison with research staff.

  • Participates in regional and national CF work groups and committees.


  • Participates in program development activities, including development of patient education materials, development and participation in CF Center website clinical materials, support groups, conferences and workshops.

  • Reviews medical records for completeness and billing information

  • Provides documents and fills out billing forms for CCS and GHPP services.

  • Assists in the review and batching of patient charges for processing by Patent Accounting.

  • Orders medications and supplies as outlined per inventory guidelines for stock as scheduled.

  • Committed to team concept and willing to assist with other duties as needed.

  • Works with clinic staff and physicians to identify opportunities for improving patient scheduling, clinic management and communications between clinicians, staff and patients.

  • Oversees outpatient authorizations and obtains inpatient authorizations.

  • Tracks and sends reminders for annual follow-up visits and annual testing.

  • Monitors and assists where necessary with patient scheduling, coordination of appointments, chart review and obtaining reports.  Functions as resource to receptionists and schedulers.


  • Continuing education is an important part of the clinical coordinator role. Professional development will require:

    • a. Hospital in-services

    • b. Professional organizations and committees

    • c. Professional certification


  • Participation in research and publications will be encouraged

  • Community and political involvement

  • Reading professional journals in the area of cystic fibrosis and related complications

  • Attends North American Cystic Fibrosis Foundation Conference annually each October.

Minimum Qualifications

Any combination of education and experience that would likely provide the required knowledge, skills and abilities as well as possession of any required licenses or certifications is qualifying.

Education: Bachelor's degree in Nursing

Experience: Three (3) years progressively responsible and directly related work experience.

License/Certification: Registered Nurse, actively licensed in California (may be in process),


Current American Heart Association (AHA) Certification for Basic Life Support (BLS) for Healthcare Providers.

Knowledge, Skills, and Abilities

These are the observable and measurable attributes and skills required to perform successfully the essential functions of the job and are generally demonstrated through qualifying experience, education, or licensure/certification. 

  • Knowledgeable in the area of cystic fibrosis ad pulmonary medicine, pediatric growth and development and nursing process.

  • Demonstrated decision-making, team leadership, organizational and prioritizing skills.

  • Ability to maintain good working relationships with other team members and personnel within and between the various patient care delivery sites.

  • Motivated to participate in the development and expansion of cystic fibrosis program, including outreach and regional program development.


 Physical Requirements and Working Conditions


The Physical Requirements and Working Conditions in which the job is typically performed are available from the Occupational Health Department. Reasonable accommodations will be made to enable individuals with disabilities to perform the essential functions of the job. 






Additional Information





  • Bilingual in Spanish helpful but not required.

  • Case Management or utilization review in acute care and/or ambulatory setting helpful.

  • Staff Nurse (level 3) or higher preferred.





Pay Range

Compensation is based on the level and requirements of the role.

Salary within our ranges may also be determined by your education, experience, knowledge, skills, location, and abilities, as required by the role, as well as internal equity and alignment with market data.

Typically, new team members join at the minimum to mid salary range.

Minimum to Midpoint Range (1.0 FTE): $146,619.20 to $183,892.80

Equal Opportunity Employer

Lucile Packard Children’s Hospital Stanford strongly values diversity and is committed to equal opportunity and non-discrimination in all of its policies and practices, including the area of employment. Accordingly, LPCH does not discriminate against any person on the basis of race, color, sex, sexual orientation or gender identity, religion, age, national or ethnic origin, political beliefs, marital status, medical condition, genetic information, veteran status, or disability, or the perception of any of the above. People of all genders, members of all racial and ethnic groups, people with disabilities, and veterans are encouraged to apply. Qualified applicants with criminal convictions will be considered after an individualized assessment of the conviction and the job requirements, and where applicable, in compliance with the San Francisco Fair Chance Ordinance.